Caregiver Burden and Its Associated Factors in Caregivers of Children and Adolescents with Chronic Conditions
Journal Title: International Journal of Community Based Nursing and Midwifery - Year 2019, Vol 7, Issue 4
Abstract
Background: Few studies have been conducted on the burden of care in caregivers of children with chronic illnesses. This study investigated the burden of care and associated factors in first-degree caregivers of children and adolescents with chronic conditions. Methods: A cross-sectional study was conducted from June to September 2017 on 385 first-degree caregivers of children and adolescents with chronic disorders. Data were collected using the Zarit burden inventory which assesses the caregiver burden in physical, psychological, economic, and relational areas and has a total score from 0 to 88. Scores 61-88, 41–60, 20–40, and <20 indicate severe, moderate, mild, and no burden. Data were analyzed using descriptive statistics and Chi-Square, Fisher’s exact tests, t-test, analysis of variance, and multiple regression analysis. Results: The mean age of the caregivers and children were 38.20±8.04 and 8.90±4.90 years, respectively. Also, 33 (8.5%), 135 (35.1%), and 181 (47%) of the caregivers suffered from severe, moderate, and mild burden, and only 9.4% perceived no burden. The mean caregiver burden scores were significantly different in terms of their education (P<0.001), job status (P=0.04), financial status (P<0.001), family size (P<0.001), numbers of children (P<0.001), numbers of children with chronic illnesses (P<0.01), type of supportive resources (P=0.004), and children’s education (P<0.01), type of disease (P<0.001), numbers of diseases (P<0.001), and interval of medical visits (P<0.001). Conclusion: Caregivers of children and adolescents with chronic disease are under pressure. Our study showed a number of factors influencing caregiver burden. Health care providers should plan family-centered care plans to decrease the burden of care in caregivers of children with chronic conditions.
Authors and Affiliations
Mohsen Adib-Hajbaghery, Bahareh Ahmadi
Keywords
Related Articles
- EP ID EP648235
- DOI 10.30476/IJCBNM.2019.73893.0.
- Views 89
- Downloads 0
The Authors’ Reply
I would like to thank for reviewing and criticizing the study entitle: “Quality of life in Iranian senior citizen: A systematic review and meta-analysis. With regard to the lack of using the Web of Science database and t...
Public Attitudes on Deadliest Diseases from 15th to 17th Centuries: A Corpus-driven Analysis of Historical Texts
A significant issue in medical health care studies is the representation of illnesses and how they change and affect public attitudes through years. Diachronic corpus-driven linguistics has provided an opportunity for re...
Determinants of Social Accountability in Iranian Nursing and Midwifery Schools: A Delphi Study
Background: Revising the medical education programs to meet the needs of society has become both a necessity and an important priority due to the considerable increase of population, changing patterns of diseases, and ne...
Exploring the Position of Community-Based Nursing in Iran: A Qualitative Study
Background: Community-based nursing focuses on providing health services to families and communities in the second and third levels of prevention and this can improve the individuals, families and communities’ quality of...
Relationship between Body Image and Psychological Well-being in Patients with Morbid Obesity
Background: Morbid obesity is rising around the world. It can cause unpleasant appearance and body image. Most of the studies have aimed to evaluate the psychopathology of overweight and obesity and paying attention to m...