CHILD’S COMPETENCES IN CHRONIC ILLNESS: The trajectory of change in an emerging adult with a brain glioma.
Journal Title: Miscellanea Anthropologica et Sociologica - Year 2017, Vol 18, Issue 3
Abstract
The paper deals with the issues of coping with chronic, terminal illness during becoming an adult. A terminally ill person’s biographical experiences are difficult twofold: because there are growing up problems and there are health problems. In particular, the authors focus on the problem how an emerging adult copes with natural, biological changes and how one copes with progressive tumour. The authors analyse these issues from a psychosocial point of view and use the method of a qualitative case study. This type of method aims to provide an in-depth analysis of a given case in biomedical terms (nature and type of brain glioma), as well as in a biographical sense (individual experience of the disease). The theoretical analysis presented here uses G. Riemann’s and F. Schutze’s generalised conception of a trajectory as a category covering disorderly social processes and the processes of suffering; R. Sennett’s conception of dialogical skills and R. Lazarus’ and S. Folkman’s transactional/relational theory of stress. The authors argue that if the patients would like to cope with the glioma, they had to seek non-standard ways of dealing with the ailment. This would require social (dialogical) competences which in discourse on the subject of one’s own illness would help to find and develop so far overlooked opportunities as well as creatively transform their biographical identity<br/><br/>
Authors and Affiliations
Małgorzata Stankiewicz-Rębiałkowska, Jacek Mianowski
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