Effect of Epilepsy on The Quality of Life of Children and Their Family Caregivers
Journal Title: IOSR Journal of Nursing and health Science - Year 2018, Vol 7, Issue 5
Abstract
Background: Epilepsy is one of the chronic illnesses that have a great impact on the life of the epileptic children and their family caregivers. The aim of the study was to: Assess the quality of life of epileptic children and their family caregivers. Subjects and Method: Correlation descriptive research design was used in the current study. Setting: This study was conducted at the Outpatient Clinic at Psychiatric Hospital & El-Nasr hospital affiliated to Ministry of Health in Port-Said. A purposive sample of 169 epileptic children with one of their family caregivers were recruited (169 caregivers). Tools: Data was collected using the following two tools: First tool: included, sociodemographic data& Health Related Quality of Life Scale for child and second tool: included WHO quality of life brief scale for the family caregivers. Results: The overall score of QOL for the epileptic children was 52.58±12.89 and it was 3 3.24 ± 14.17 for the family caregivers of children with epilepsy, a statistically significant correlation was detected between family caregivers Quality of Life and their epileptic children Quality of Life. Conclusion: It was concluded from this study, that, family caregivers of children with epilepsy showed a decrease in QOL, the study also provides important evidence that the illness of epileptic children had an impact on their family caregivers' quality of life. Recommendation: Family care givers living with epileptic children must be adequately educated on how to cope with psychological, physical, environmental and social stress and improve on their overall quality of life.
Authors and Affiliations
Magda Ali Mohamed, Mona Abd Elsabour Hassan, Manal Farouk Mohamed
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