Highlights from the Polish Pulmonary Hypertension Patients and their Friends Meeting in Krakow
Journal Title: Journal of Rare Cardiovascular Diseases - Year 2016, Vol 3, Issue 1
Abstract
Annual Meeting of the Pulmonary Hypertension Patients and their Friends organized by Pulmonary Hypertension Association (PHA) of Poland was held on June 11, 2016 at the Department of Cardiac and Vascular Diseases of the John Paul II Hospital in Kra‑ kow, a referral pulmonary hypertension (PH) Centre. The Meet‑ ing attracted a great number of PH patients with their families and caregivers. More than 130 participants were hosted by the Di‑ rector of the John Paul II Hospital – dr Anna Prokop‑Staszecka, the Head of the Department of Cardiac and Vascular Diseases – prof. Piotr Podolec, the Coordinator of the PH Programme – assoc. prof. Grzegorz Kopeć, and the President of PHA Poland – Mrs Alicja Morze, to spend a pleasant afternoon together and talk about lights and shadows of being a PH patient or a relative or a caregiver of such. (...)
Authors and Affiliations
Jakub Stępniewski
A 23‑year‑old woman with Marfan syndrome and spine deformity (RCD code: I-2A.1)
Marfan syndrome is one of the most common heritable connective tissue disorders that is caused by various mutations of the Fibrillin-1(FBN1) gene. The cardinal features of Marfan syndrome are aortic root dilatation and e...
Rare diseases and disorders and rare cardiovascular complications
n/a
Effect of first‑month specific therapy determines long‑term clinical outcome in patients with pulmonary arterial hypertension
Efficacy of pulmonary arterial hypertension (PAH)-specific therapy may differ among the patients depending on the PAH aetiology. Aim: To compare the real‐life efficacy of PAH‐specific therapy between non‐congenital hear...
Patient with multiple ICD interventions (RCD code: V‑2A.O)
The authors report a case of a 58-year-old man with coronary artery disease and left ventricular aneurysm following inferior wall infarction, who was implanted with a single chamber cardioverter-defibrillator (ICD) for p...
Common problems in rare congenital heart diseases
Congenital heart disease (CHD) is the most common developmental anomaly and is found in about 1% of all live-born children.Recent progress in cardiac surgery and pediatric cardiology hasresulted in large numbers of adult...